Content from Twitter
| From: | Fri Sep 16 10:00:00 PDT 2011 |
| To: | Fri Sep 16 11:15:00 PDT 2011 |
| NHDD | Hi everyone & welcome to the first #NHDD chat, dedicated to raising awareness about advance care planning | |
| NHDD | Please take a second to introduce yourself and say hello #NHDD | |
| EOLnavigator | Niamh van Meines, Hospice Consultant, Author. #nhdd | |
| ctffox | Good morning/afternoon all! Craig Fukushima, partner in a health care consulting firm. Thanks for the invite Renee! #NHDD | |
| renee_berry | the next hour I'll be tweeting frm the first TweetChat abt patient centered care through advance care planning (feel free to join in!) #NHDD | |
| KathyKastner | Hi all. I'm developing an app for end of life decisions :) #NHDD | |
| hospiceman | RT @EOLnavigator: Niamh van Meines, Hospice Consultant, Author. #nhdd | |
| renee_berry | RT @NHDD: Hi everyone & welcome to the first #NHDD chat, dedicated to raising awareness about advance care planning #hpm #NHDD | |
| ctsinclair | RT @NHDD: Hi everyone & welcome to the first #NHDD chat, dedicated to raising awareness about advance care planning | |
| KathyKastner | @DNRstories LJ - come joine #NHDD if you're round | |
| jfclearywisc | jim Cleary, UW Palliative care joining the National Healthcare Decisions Day tweetchat intermittently for the next hour #nhdd | |
| DeathwDignity | Hi all. Thanks @kathykastner for calling this to my attention!
#NHDD | |
| EOLnavigator | Hey Kathy, Renee, Charlie, Craig & Christian #nhdd | |
| DeathwDignity | We provide information, education, research & support for the preservation, implementation & promotion of Death with Dignity laws. #NHDD | |
| KathyKastner | Back at you all @EOLnavigator: Hey Kathy, Renee, Charlie, Craig & Christian #NHDD | |
| EOLnavigator | @jfclearywisc Enjoying your pain policy articles #hpm #hospice #nhdd | |
| NHDD | Weclome @KathyKastner @ctfox @ctsinclair @rene_berry @EolNavigator @jfclearwisc & @DeathwDignity!! #NHDD | |
| ctffox | @KathyKastner Hi Kathy! Good to "see" you!! #NHDD | |
| NHDD | & @hospiceman hello! We'll get started with T1 in just a few minutes #NHDD | |
| jessicajohanna | Hi all! Long live patient empowerment! #nhdd | |
| EOLnavigator | MT @DeathwDignity: We provide info, ed, research & support for the preservation, implementation & promotion of Death w/ Dignity laws. #nhdd | |
| KathyKastner | @DrBeckerSchutte come check out #NHDD chat | |
| renee_berry | RT @jessicajohanna: Hi all! Long live patient empowerment! #NHDD | |
| KathyKastner | Amen!RT @jessicajohanna: Hi all! Long live patient empowerment! #NHDD | |
| ctffox | RT @KathyKastner: @DrBeckerSchutte come check out #NHDD chat #NHDD | |
| KathyKastner | Totally likewise :)RT @ctffox: @KathyKastner Hi Kathy! Good to "see" you!! #NHDD | |
| jfclearywisc | Thanks very much @EOLnavigator: @jfclearywisc Enjoying your pain policy articles http://t.co/a4cDkEnn #hpm #hospice #nhdd | |
| NHDD | T1 Why are advance directives important to you? #nhdd | |
| DrBeckerSchutte | @KathyKastner Kathy, I want to, but I have to get my car packed. I hope it's a recurring event! #NHDD | |
| KathyKastner | T1 Now that I'm understanding all the choices, decisions, options realize it's only time I may have 'control' of my future #NHDD | |
| EOLnavigator | T1: I want to make sure to follow people's wishes at EOL. Most important mission EVER. #hpm #nhdd | |
| renee_berry | RT @NHDD: T1 Why are advance directives important to you? #NHDD | |
| renee_berry | RT @KathyKastner: T1 Now that I'm understanding all the choices, decisions, options realize it's only time I may have 'control' of my future #NHDD | |
| NatriceR | RT @KathyKastner: T1 Now that I'm understanding all the choices, decisions, options realize it's only time I may have 'control' of my future #NHDD | |
| DeathwDignity | T1: Advance directives help lend peace of mind to patients and their families, but discussion about it also necessary. #NHDD | |
| EOLnavigator | RT @NHDD: T1 Why are advance directives important to you? #nhdd | |
| DeathwDignity | RT @NHDD: T1 Why are advance directives important to you? #NHDD | |
| NatriceR | RT @DeathwDignity: T1: Advance directives help lend peace of mind to patients and their families, but discussion about it also necessary. #NHDD | |
| jessicajohanna | RT @NHDD: T1 Why are advance directives important to you? #nhdd | |
| DrBeckerSchutte | This post about conversations we aren't having was inspired by #NHDD | |
| renee_berry | T1 Advance directives are important to me because they are such an incredible tool for real patient centered care #NHDD | |
| EOLnavigator | RT @DeathwDignity: Advance directives help lend peace of mind to patients & their families, but discussion about it also necessary. #nhdd | |
| ctffox | @NHDD T1 It provides the opportunity for the patient to express their wishes. Patient centered care. #NHDD | |
| DeathwDignity | RT @DrBeckerSchutte: This post about conversations we arent having was inspired by #NHDD | |
| KathyKastner | T1 I hear so much about upset, outrage, confusion when e-o-l discussions/wishes aren't in place. #NHDD | |
| NatriceR | RT @ctffox: @NHDD T1 It provides the opportunity for the patient to express their wishes. Patient centered care. #NHDD | |
| renee_berry | RT @jfclearywisc: Thanks very much @EOLnavigator: @jfclearywisc Enjoying your pain policy articles http://t.co/a4cDkEnn #hpm #hospice #nhdd | |
| nasalee | @renee_berry #NHDD http://t.co/EZBwwHEN | |
| DrBeckerSchutte | @DeathwDignity Actual post link is here: http://t.co/tfkUZ2cW to post inspired by #NHDD | |
| NatriceR | RT @DrBeckerSchutte: @DeathwDignity Actual post link is here: http://t.co/tWzDOqSk to post inspired by #NHDD | |
| EOLnavigator | Advance directives give a voice to people who need one when they are approaching the end of life & may not be able to. #nhdd | |
| NHDD | RT @DrBeckerSchutte: @DeathwDignity Actual post link is here: http://t.co/7Oq1YSJ8 to post inspired by #nhdd | |
| NHDD | RT @ctffox: @NHDD T1 It provides the opportunity for the patient to express their wishes. Patient centered care. #NHDD | |
| DeathwDignity | Thanks! RT @DrBeckerSchutte: Actual post link is here: http://t.co/EjtBRPKV to post inspired by #NHDD | |
| jessicajohanna | T1 Taking charge of my health decisions & what happens to my body is something uniquely human #nhdd | |
| DeathwDignity | So true. RT @EOLnavigator: Advance directives give a voice to people when they are approaching the end of life & may not be able to. #NHDD | |
| DrBeckerSchutte | @NatriceR Thanks for sharing the right post! My brain is scattered. #NHDD | |
| renee_berry | RT @EOLnavigator Advance directives give a voice to people who need one when they are approaching the end of life & may not be able to #NHDD | |
| renee_berry | @EOLnavigator I think there is such an opportunity to learn about the depth of these healthcare decisions before #eolc #NHDD | |
| DeathwDignity | @PracticalWisdom if you're not too busy at #med2, join me for a #NHDD TweetChat at: http://t.co/tLFmbkKz #NHDD | |
| DrBeckerSchutte | @NHDD Okay, I have to leave the computer. I'm totally getting sucked into this chat--it's so important. But must leave town! #nhdd | |
| EOLnavigator | Adv. Directives provide the framework for decision making at end of life. Tell someone today what your wishes are & write it down. #nhdd | |
| NatriceR | @DrBeckerSchutte @NatriceR totally by chance;)!! hi all, just came from one chat into another;) hate to miss anything important #NHDD | |
| ctffox | @NHDD Advance directives also provides needed guidance to providers. Helps to keep them from being caught in the middle. #NHDD | |
| NHDD | T1 (does anyone have a personal or professional experience that has shaped why advance directives are important to them?) #nhdd | |
| EOLnavigator | Agree! RT @renee_berry: I think there is such an opportunity to learn about the depth of these healthcare decisions before #eolc #nhdd | |
| KathyKastner | T1 I have also gleaned that there may be cross-purpose to deal with: md(with all due respect) mission=curing/saving vs comfort/diginty #NHDD | |
| jessicajohanna | T1 It can also promotes pivotal dialogue btw you & your family, friends, doctors. Communication is key! #nhdd | |
| NHDD | RT @jessicajohanna T1 It can also promotes pivotal dialogue btw you & your family, friends, doctors. Communication is key! #nhdd | |
| EOLnavigator | @NHDD Yes! Was giving chemotherapy to a dying concentration camp survivor who wanted chemo until her final breath. #nhdd | |
| NHDD | RT @EOLnavigator: Agree! RT @renee_berry: I think there is such an opportunity to learn about the depth of these healthcare decisions before #eolc #nhdd | |
| KathyKastner | T1: my mother: nothing written only discussion: keep me alive, chaos between us sibs. prolonged suffering. yeuch. #NHDD | |
| DeathwDignity | RT @jessicajohanna: T1 Adv. Dir. can also promote pivotal dialogue btw you & your family, friends, doctors. Communication is key! #NHDD | |
| NHDD | @ctffox that is such an important point! #nhdd | |
| NHDD | RT @ctffox: @NHDD Advance directives also provides needed guidance to providers. Helps to keep them from being caught in the middle. #NHDD | |
| KathyKastner | RT @DeathwDignity: RT @jessicajohanna: T1 AD can also promote pivotal dialogue btw u & family, friends, mds. Communication is key! #NHDD | |
| NHDD | @NatriceR thanks for joining us! We're currently discussing why advance directives are important to us as individuals #nhdd | |
| NatriceR | RT @NHDD: @NatriceR thanks for joining us! Were currently discussing why advance directives are important to us as individuals #NHDD | |
| tonimo2020 | RT @jfclearywisc: jim Cleary, UW Palliative care joining the National Healthcare Decisions Day tweetchat intermittently for the next hour #nhdd | |
| NatriceR | @NHDD @NatriceR A great convo to have, I need to write down a few of my own directives! #NHDD | |
| renee_berry | couldn't have said it better! RT @jessicajohanna T1 Taking charge of my health decisions & my body is something uniquely human #NHDD | |
| EOLnavigator | @KathyKastner: "mission=curing/saving vs comfort/dignity" can have comfort & dignity while trying to cure too! #nhdd | |
| SLSNews | RT @NHDD: Hi everyone & welcome to the first #NHDD chat, dedicated to raising awareness about advance care planning | |
| NHDD | @DrBeckerSchutte we'll post the transcript later, thanks for stopping in! #nhdd | |
| NatriceR | RT @EOLnavigator: @KathyKastner: "mission=curing/saving vs comfort/dignity" can have comfort & dignity while trying to cure too! #NHDD | |
| renee_berry | RT @NHDD: T1 (does anyone have a personal or professional experience that has shaped why advance directives are important to them?) #nhdd | |
| DeathwDignity | RT @EOLnavigator: @KathyKastner: "mission=curing/saving vs comfort/dignity" can have comfort & dignity while trying to cure too! #NHDD | |
| KathyKastner | right onRT @EOLnavigator: @KathyKastner: "mission=curing/saving vs comfort/dignity" can have comfort & dignity while trying 2 cure! #NHDD | |
| NHDD | We're about to move to T2, so please share any closing thoughts on T1 about why advance directives are important to you #nhdd | |
| KathyKastner | T1 personal experience: mother's verbal: keep me alive at all costs = chaos w sibs, horrible e-o-l. Uh uh. not me. #NHDD | |
| AdvanceCarePlan | Over 200 people attended our advance care planning session at CHPC conference last week! #NHDD #NHDD | |
| jfclearywisc | @renee_berry @NHDD Multiple examples of advanced directives. Examples at http://t.co/yoULAAMK #nhdd | |
| DeathwDignity | That's great! RT @AdvanceCarePlan: Over 200 people attended our advance care planning session at CHPC conference last week! #NHDD | |
| NHDD | RT @jfclearywisc: @renee_berry @NHDD Multiple examples of advanced directives. Examples at http://t.co/dlTsgMBn #nhdd | |
| ctsinclair | Christian sinclair palliative doc here supporting #nhdd first chat | |
| renee_berry | RT @KathyKastner T1 personal experience: mothers verbal: keep me alive at all costs = chaos w sibs, horrible e-o-l. Uh uh. not me. #NHDD | |
| EOLnavigator | Adv. directives are about the personal choice which sometimes is 2 "try 2 save a life" even when it seems futile---> challenging 4 me. #nhdd | |
| NatriceR | @ctsinclair hi there! #NHDD | |
| EOLnavigator | Congrats! RT @AdvanceCarePlan: Over 200 people attended our advance care planning session at CHPC conference last week! #NHDD #nhdd | |
| AdvanceCarePlan | More on advance directives at www.advancecareplanning.ca for Canadians incl. wallet cards etc. #NHDD | |
| renee_berry | @EOLnavigator I think it's so important to respect that each person's preferences, choices, decisions will be different #NHDD | |
| NatriceR | RT @EOLnavigator: Adv. directives are about the personal choice which sometimes is 2 "try 2 save a life" even when it seems futile---> challenging 4 me. #nhdd | |
| NHDD | Thanks Christian, hello! RT @ctsinclair: Christian sinclair palliative doc here supporting #nhdd first chat #nhdd | |
| CasaHospice | RT @NHDD: T1 Why are advance directives important to you? #nhdd | |
| NHDD | awesome! RT @AdvanceCarePlan: Over 200 people attended our advance care planning session at CHPC conference last week! #nhdd | |
| NatriceR | RT @renee_berry: @EOLnavigator I think its so important to respect that each persons preferences, choices, decisions will be different #NHDD | |
| aliciabloom | RT @NHDD: Hi everyone & welcome to the first #NHDD chat, dedicated to raising awareness about advance care planning | |
| AdvanceCarePlan | RT @renee_berry totally agree #NHDD | |
| NHDD | Hi @aliciabloom & @CasaHospice, we're actually just about to move to T2.. welcome! #nhdd | |
| KathyKastner | Easier said than done?RT @NatriceR: RT @renee_berry: @EOLnavigator so imp to respecteach persons pref, choices, decisions will b diff #NHDD | |
| EOLnavigator | @renee_berry Really important----> have 2 program yourself as a clinician to embrace goals outside your comfort zone. #nhdd | |
| NHDD | T2 What are ways individuals (<--key word) can advocate for increasing informed medical decision making with advance care planning? #nhdd | |
| aliciabloom | excited to jump in when i can and support the first #NHDD chat! i'm an MSW, LSW in #hospice & #palliative care. | |
| NatriceR | RT @KathyKastner: Easier said than done?RT @NatriceR: RT @renee_berry: @EOLnavigator so imp to respecteach persons pref, choices, decisions will b diff #NHDD | |
| NatriceR | RT @aliciabloom: excited to jump in when i can and support the first #NHDD chat! im an MSW, LSW in #hospice & #palliative care. #NHDD | |
| jessicajohanna | RT @NHDD: T2 What are ways individuals (<--key word) can advocate for increasing informed medical decision making with advance care planning? #nhdd | |
| KathyKastner | Tough RT@EOLnavigator: @renee_berry Really important-> have 2 program yourself as a clinician to embrace goals outsider comfort zone. #NHDD | |
| jfclearywisc | Also new: Int Soc of Advanced Care Planning & End of Life Care: http://t.co/mFvEOZ0q #hpm #NCDs #nhdd | |
| EOLnavigator | @KathyKastner @NatriceR @renee_berry Definitely the biggest challenges for #healthcare clinicians #nhdd | |
| renee_berry | RT @aliciabloom: excited to jump in when i can and support the first #NHDD chat! im an MSW, LSW in #hospice & #palliative care #NHDD | |
| SanDiegoHospice | Hello all: better late than never. Glad to be a part of this! #NHDD | |
| DeathwDignity | RT @NHDD: T2 What are ways individuals can advocate for increasing informed medical decision making with advance care planning? #NHDD | |
| AdvanceCarePlan | T2 send stories to your local media outlets! The more voices with a story the more likely people will start to listen. #NHDD | |
| ctffox | @NHDD T2 One of the best ways to advocate is by example. Make you have had the conversation with your family. #NHDD | |
| renee_berry | RT @EOLnavigator: @renee_berry Really important----> have 2 program yourself as a clinician to embrace goals outside your comfort zone. #nhdd | |
| KathyKastner | ps @EOLnavigator and @renee_berry - by 'tough' I meant tough for you to do :) #NHDD | |
| NHDD | RT @jfclearywisc: Also new: Int Soc of Advanced Care Planning & End of Life Care: http://t.co/mFvEOZ0q #hpm #NCDs #nhdd | |
| jessicajohanna | T2 Spread the word; talk to your friends & family; use social media to reach out to others; set an example! #nhdd | |
| aliciabloom | advance directives give individuals choice & control over their healthcare. it's about autonomy. it's also a gift to your family. #NHDD | |
| renee_berry | RT RT @ctffox T2 One of the best ways to advocate is by example. Make you have had the conversation with your family. #NHDD | |
| MeredithGould | RT @renee_berry: RT @NHDD: Welcome to the first #NHDD chat, dedicated to raising awareness about advance care planning #hpm #NHDD | |
| EOLnavigator | T2: Normalize the conversation. Remove cultural, social barriers to achieve the goal of end of life care planning. #nhdd | |
| KathyKastner | @MeredithGould! Oh boy #NHDD | |
| NHDD | RT @aliciabloom: advance directives give individuals choice & control over their healthcare. it's about autonomy. it's also a gift to your family. #NHDD | |
| MeredithGould | RT @NHDD: RT @jfclearywisc: @renee_berry @NHDD Multiple examples of advanced directives. Examples at http://t.co/f3usnAXP #nhdd | |
| HealthFaith | RT @NHDD: RT @jfclearywisc: @renee_berry @NHDD Multiple examples of advanced directives. Examples at http://t.co/r4zb7ail #nhdd | |
| NHDD | RT @jessicajohanna: T2 Spread the word; talk to your friends & family; use social media to reach out to others; set an example! #nhdd | |
| CasaHospice | Great point! MT @renee_berry @ctffox T2 1 of the best ways to advocate is by example. Have the conversation with your family. #NHDD | |
| SanDiegoHospice | T2: We've had community members ask us to speak about POLST, Advance Directives. Great that individuals are advocating to learn more! #NHDD | |
| renee_berry | @EOLnavigator absolutely, this is so important #NHDD | |
| EOLnavigator | RT @aliciabloom: adv directives give individuals choice & control over their healthcare. its about autonomy & a gift to your family. #nhdd | |
| renee_berry | RT @EOLnavigator: T2: Normalize the conversation. Remove cultural, social barriers to achieve the goal of end of life care planning. #nhdd | |
| ctffox | @EOLnavigator Good point about cultural considerations. They definitely have an effect on advance directives/eolc. #NHDD | |
| MeredithGould | #nhdd Zipping in late (oops!) T1: want to think through what I want and let others know! | |
| KathyKastner | How would you use social media to get over upset of of e-o-l discussions? #NHDD | |
| KathyKastner | RT @ctffox: @EOLnavigator Good point about cultural considerations. They definitely have an effect on advance directives/eolc. #NHDD | |
| DeathwDignity | T2: Death is still taboo to talk about in our society. Diminishing this barrier will help to get more comfortable w/adv. planning #NHDD | |
| MeredithGould | RT @EOLnavigator: T2: Normalize the conversation. Remove cultural, social barriers to achieve the goal of end of life care planning. #nhdd | |
| NHDD | @SanDiegoHospice absolutely, it's incredible to see organizations encouraging advance care planning #healthlit #nhdd | |
| NHDD | RT @SanDiegoHospice: T2: We've had community members ask us to speak about POLST, Advance Directives. Great that individuals are advocating to learn more! #NHDD | |
| MeredithGould | RT @KathyKastner: How would you use social media to get over upset of of e-o-l discussions? #NHDD//more talk leads to normalization? | |
| KathyKastner | RT @DeathwDignity: T2: Death still taboo 2 talk abt in r society. Diminishing this barrier will help get more comfortable w/adv. plan #NHDD | |
| renee_berry | waving :) hello hello! RT @MeredithGould: #nhdd Zipping in late (oops!) T1: want to think through what I want and let others know! #NHDD | |
| EOLnavigator | Use social media to provide information. Less confrontational when people have difficulty w/ the talk about end of life care wishes. #nhdd | |
| SanDiegoHospice | We have trained volunteers who share their personal experience abt advanced care planning-both good and plan. Make it real for people. #NHDD | |
| MeredithGould | #NHDD T2 Death, like life, is part of life. We need to start talking about the continuum of LIFE & stop treating death as horrible. | |
| MeredithGould | @renee_berry Oy...with the waving! #nhdd #NHDD | |
| renee_berry | @MeredithGould @KathyKastner I think the earlier people can have these conversations (when they're healthy) the better #NHDD | |
| AdvanceCarePlan | @EOLnavigator webinars are a good educational tool as well and less confrontational than a conversation for ppl who r not ready #NHDD | |
| jessicajohanna | RT @MeredithGould: #NHDD T2 Death, like life, is part of life. We need to start talking about the continuum of LIFE & stop treating deat ... | |
| KathyKastner | @MeredithGould Glad to see it didn't tke you long to think about what to say :)
#NHDD | |
| MeredithGould | T2 The circumstances of death may be horrible but death itself isn't, it's natural & inevitable. #NHDD | |
| renee_berry | RT @MeredithGould: RT @KathyKastner: How would you use social media to get over upset of of e-o-l discussions? #NHDD//more talk leads to ... | |
| MeredithGould | @KathyKastner Caffeinated tea is my copilot #NHDD | |
| jfclearywisc | Int Soc of Advanced Care Planning & End of Life Care: http://t.co/mFvEOZ0q #hpm #NCDs #nhdd | |
| NHDD | RT @MeredithGould: T2 The circumstances of death may be horrible but death itself isnt, its natural & inevitable #nhdd | |
| EOLnavigator | RT @AdvanceCarePlan: webinars are a good educational tool as well and less confrontational than a conversation for ppl who r not ready #nhdd | |
| DeathwDignity | RT @MeredithGould: T2 Death, like life, part of life. Need to start talking about continuum of LIFE & stop treating death as horrible. #NHDD | |
| KathyKastner | kids (22/25) absolutely hate talking about it. (Husband says: if I die before him, he'll never talk to me again) #NHDD | |
| NHDD | RT @MeredithGould: #NHDD T2 Death, like life, is part of life. We need to start talking about the continuum of LIFE & stop treating deat ... | |
| MeredithGould | T2 My fave snarky comment (often muttered to self): Get a spiritual life. #NHDD | |
| AdvanceCarePlan | RT @MeredithGould: T2 My fave snarky comment (often muttered to self): Get a spiritual life. #NHDD | |
| MeredithGould | @KathyKastner Told a friend being deployed, "if you die, I'll kill you!" He came home alive. Thank God. #NHDD | |
| SanDiegoHospice | T2: (part 2) - meant to say that it helps to share both helpful and not-so-helpful tips about advance care planning. Make it real. #NHDD | |
| EOLnavigator | @KathyKastner I teach massage students in that age group, I tell stories & jokes to prime them 4 the important discussion about EOL #nhdd | |
| hospiceman | RT @jfclearywisc: Int Soc of Advanced Care Planning & End of Life Care: http://t.co/mFvEOZ0q #hpm #NCDs #nhdd | |
| renee_berry | @KathyKastner often I think it's not age specific, people don't want to talk/think about anyone they love experiencing illness #NHDD | |
| aliciabloom | educating re: advance directives can/should be done at many levels-- family, community, hospitals. more we talk, less scary it is. #NHDD | |
| ctffox | @KathyKastner Sounds like your kids & husband drank the same Kool Aid as my wife! :-) #NHDD | |
| MeredithGould | @aliciabloom Agree!! More talk about reality! #NHDD | |
| KathyKastner | Oh please please come see, comment on my wiki: Making the best of The End
http://t.co/vxR135zm (for app in development) #NHDD | |
| NHDD | RT @ctffox: @NHDD T2 One of the best ways to advocate is by example. Make you have had the conversation with your family. #nhdd | |
| uwsmph | RT @jfclearywisc: jim Cleary, UW Palliative care joining the National Healthcare Decisions Day tweetchat intermittently for the next hour #nhdd | |
| NHDD | RT @SanDiegoHospice: T2: (part 2) - meant to say that it helps to share both helpful and not-so-helpful tips about advance care planning. Make it real. #NHDD | |
| DeathwDignity | @aliciabloom and more people's true wishes will be honored. #NHDD | |
| KathyKastner | LOLRT @ctffox: @KathyKastner Sounds like your kids & husband drank the same Kool Aid as my wife! :-) #NHDD | |
| AdvanceCarePlan | RT @aliciabloom: educating re: advance directives can/should be done at many levels- family,hospitals. more we talk, less scary it is. #NHDD | |
| EOLnavigator | TY guys....just gave me an idea 4 a consulting project about EOL discussions. #nhdd | |
| MeredithGould | T2 Anyone else think that coming close to death helps remove the freak-out factor? #nhdd | |
| AdvanceCarePlan | we are also encouraging ppl to start the convo every thanksgiving. #NHDD | |
| MeredithGould | @AdvanceCarePlan Before or after the over-cooked turkey is served? #NHDD | |
| NHDD | welcome! RT @uwsmph: RT @jfclearywisc Jim Cleary, UW Palliative care joining the NHDD tweetchat intermittently for the next hour #nhdd | |
| renee_berry | yes, it has been for me at least RT @MeredithGould: T2 Anyone else think that coming close to death helps remove the freak-out factor? #NHDD | |
| aliciabloom | reimbursing physicians to have discussions about advance directives would allow time for informed dialogue & normalize it #NHDD | |
| MDelaCalzada | T2: Had both good & bad experiences talking abt EOL w/family. It's tough, but having the appropriate tools helpz http://t.co/xfmMYVmU #NHDD | |
| EOLnavigator | Totally! RT @MeredithGould: T2 Anyone else think that coming close to death helps remove the freak-out factor? #nhdd | |
| renee_berry | great, @EngagewithGrace also encourages this RT @AdvanceCarePlan: we are also encouraging ppl to start the convo every thanksgiving #NHDD | |
| NHDD | RT @aliciabloom: educating re: advance directives can/should be done at many levels-- family, community, hospitals. more we talk, less scary it is. #NHDD | |
| MeredithGould | @renee_berry @EOLnavigator That's certainly my experience. Very liberating to have almost died. #NHDD | |
| ctffox | Yes but not for family/friends-RT @MeredithGould: T2 Anyone else think that coming close to death helps remove the freak-out factor? #NHDD | |
| EOLnavigator | Hope someone talked 2 the turkey about adv. directives! @MeredithGould @AdvanceCarePlan B4 or aft. the over-cooked turkey is served? #nhdd | |
| MeredithGould | @ctffox Right...wasn't referring to them! #NHDD | |
| renee_berry | @MeredithGould do you think it increases with close encounters? (I've had quite a few) #NHDD | |
| SanDiegoHospice | RT @MDelaCalzada: T2: Had both good & bad experiences talking abt EOL w/family. It's tough, but having the appropriate tools helpz http://t.co/xfmMYVmU #NHDD | |
| renee_berry | yes! RT @aliciabloom reimbursing MDs to have discussions about advance directives would allow time for informed dialogue/normalize it #NHDD | |
| MeredithGould | @renee_berry Yes, I count close encounters and NDEs #NHDD | |
| NHDD | About to move to T3, please share final thoughts on ways individuals can advocate for informed decision making w/advance directives #nhdd | |
| DeathwDignity | Oh, new motto: "Talk turkey about death."RT @EOLnavigator: Hope someone talked 2 the turkey @MeredithGould @AdvanceCarePlan #NHDD | |
| MeredithGould | @DeathwDignity LOLOLOL #NHDD | |
| ctffox | @MeredithGould How did you convey your comfort level with death to family/friends? Or is that not possible? #NHDD | |
| renee_berry | @ctffox great point #NHDD | |
| renee_berry | RT @ctffox: Yes but not for family/friends-RT @MeredithGould: T2 Anyone else think that coming close to death helps remove the freak-out factor? #NHDD | |
| DeathwDignity | Good question.RT @ctffox: @MeredithGould How did you convey your comfort level with death to family/friends? Or is that not possible? #NHDD | |
| EOLnavigator | ROTFL @DeathwDignity @EOLnavigator @MeredithGould @AdvanceCarePlan "talk turkey about death" #nhdd | |
| MeredithGould | @ctffox Simply told them! I also tend to ask somewhat casual & good-humored about my own demise. #NHDD | |
| KathyKastner | I start convo's by saying: CPR is not like what you see on ER/Grey's Anatomy. #NHDD | |
| PSWCanada2007 | Hi again, got kicked off as NatriceR for too many twts, such a great chat I had to come back #NHDD | |
| VillageMemorial | T2 Why not use birthdays as celebrations of life & good times to revisit advanced directives/wills? #nhdd | |
| PSWCanada2007 | RT @KathyKastner: I start convos by saying: CPR is not like what you see on ER/Greys Anatomy. #NHDD | |
| AdvanceCarePlan | RT @DeathwDignity: Oh, new motto: "Talk turkey about death." #NHDD | |
| renee_berry | great idea RT @VillageMemorial: T2 Why not use birthdays as celebrations of life & good times to revisit advanced directives/wills? #NHDD | |
| MeredithGould | @KathyKastner I used to keep track of how quickly into an episode someone would start crying #NHDD | |
| jessicajohanna | T2 Witnessing a peaceful death w/ that person around family, at home, can also decrease freak-out factor #nhdd | |
| joniwatson | RT @renee_berry: yes! RT @aliciabloom reimbursing MDs to have discussions about advance directives would allow time for informed dialogue/normalize it #NHDD | |
| PSWCanada2007 | @VillageMemorial thats a great idea! #NHDD | |
| MeredithGould | RT @jessicajohanna: T2 Witnessing a peaceful death w/ that person around family, at home, can also decrease freak-out factor #nhdd | |
| renee_berry | @PSWCanada2007 @KathyKastner ... SO TRUE #NHDD | |
| PSWCanada2007 | RT @jessicajohanna: T2 Witnessing a peaceful death w/ that person around family, at home, can also decrease freak-out factor #NHDD | |
| EOLnavigator | prob. meets with alot of resistance on that special day. RT @VillageMemorial: T2 Why not use birthdays #nhdd | |
| renee_berry | RT @PSWCanada2007: RT @KathyKastner: I start convos by saying: CPR is not like what you see on ER/Greys Anatomy. #NHDD | |
| DeathwDignity | RT @jessicajohanna: T2 Witnessing a peaceful death w/ that person around family, at home, can also decrease freak-out factor #NHDD | |
| ctffox | @MeredithGould I think your casual & good humored approach would relax them over time also. Has that been your experience? #NHDD | |
| MeredithGould | @EOLnavigator How about on a wedding anniversary? #nhdd | |
| NHDD | T3 As participants in the first NHDD Tweetchat, what things/ideas/goals would you like to see from this community? #nhdd | |
| MeredithGould | @ctffox Yes, that has been my experience & also when I've been involved with hospice situations: good humored gravitas/reverence #NHDD | |
| jessicajohanna | RT @NHDD: T3 As participants in the first NHDD Tweetchat, what things/ideas/goals would you like to see from this community? #nhdd | |
| AdvanceCarePlan | Maybe also make appointing a decision maker mandatory when you receive your drivers/marriage license? #NHDD | |
| DeathwDignity | RT @NHDD: T3 As participants in the first NHDD Tweetchat, what things/ideas/goals would you like to see from this community? #NHDD | |
| VillageMemorial | @EOLnavigator Possibly, yet when celebrating another year of life, it kind of makes sense that one would also ensure future EOL wishes #nhdd | |
| MeredithGould | RT @AdvanceCarePlan: Maybe also make appointing a decision maker mandatory when you receive your drivers/marriage license? #NHDD | |
| EOLnavigator | Would that be a happy or unhappy marriage?! RT @MeredithGould: @EOLnavigator How about on a wedding anniversary? #nhdd | |
| NHDD | RT @jessicajohanna: T2 Witnessing a peaceful death w/ that person around family, at home, can also decrease freak-out factor #nhdd | |
| MeredithGould | @EOLnavigator Either? #nhdd | |
| PSWCanada2007 | RT @AdvanceCarePlan: Maybe also make appointing a decision maker mandatory when you receive your drivers/marriage license? #NHDD | |
| renee_berry | RT @NHDD: T3 As participants in the first NHDD Tweetchat, what things/ideas/goals would you like to see from this community? #nhdd | |
| EOLnavigator | Strategic planning for NHDD 2012. Work on engagement together. #nhdd | |
| KathyKastner | T3 I'd like to see/find plain language (video?) of proceedures: CPR, intubation, PEG, ventilator etc so 'real' peeps get better sense #NHDD | |
| DeathwDignity | T3: Collaborating on blog posts, possibly webinars, and other mediums beyond twitter. #NHDD | |
| VillageMemorial | Good idea! @PSWCanada2007 @AdvanceCarePlan: Make appointing a decision maker mandatory when you receive your drivers/marriage license? #nhdd | |
| MeredithGould | #NHDD folks, here's some shameless self-promotion from me, my blog post about...you'll see: http://t.co/yNTB0BKP | |
| hospiceman | RT @EOLnavigator: Strategic planning for NHDD 2012. Work on engagement together. #nhdd | |
| MeredithGould | RT @DeathwDignity: T3: Collaborating on blog posts, possibly webinars, and other mediums beyond twitter. #NHDD//Twitter may be limiting | |
| PSWCanada2007 | RT @KathyKastner: T3 I'd like to see/find plain language (video?) of proceedures: CPR, intubation, PEG, ventilator etc so 'real' peeps get better sense #NHDD | |
| CasaHospice | T3 We would love to hear more about how others teach advance directive education in personal communities. Let's share ideas together! #NHDD | |
| renee_berry | RT @EOLnavigator: Strategic planning for NHDD 2012. Work on engagement together. #NHDD | |
| PSWCanada2007 | RT @renee_berry: RT @EOLnavigator: Strategic planning for NHDD 2012. Work on engagement together. #NHDD | |
| EOLnavigator | @meredithgould Happy Marriage: Yes! Unhappy marriage, I can imagine a negative discussion #nhdd | |
| jessicajohanna | T3 I'd like to see continued openness, support, trust & engagement w/ one another. & also more personal stories. #nhdd | |
| NHDD | RT @CasaHospice: T3 We would love to hear more about how others teach advance directive education in personal communities. Let's share ideas together! #NHDD | |
| MeredithGould | RT @jessicajohanna: T3 I'd like to see continued openness, support, trust & engagement w/ one another. & also more personal stories. #nhdd | |
| EOLnavigator | MT @CasaHospice: T3 We would love 2 hear more about how others teach adv directive ed in communities. Lets share ideas together! #nhdd | |
| MeredithGould | @jessicajohanna I'm just going to RT everything you post! #nhdd | |
| renee_berry | RT @KathyKastner: T3 I'd like to see/find plain language (video?) of proceedures: CPR, intubation, PEG, ventilator etc so 'real' peeps get better sense #NHDD | |
| PSWCanada2007 | :)RT @MeredithGould: @jessicajohanna Im just going to RT everything you post! #NHDD | |
| VillageMemorial | T3 Sharing stories. Sharing ideas. Collaborating on improving the EOL experience. #nhdd | |
| jessicajohanna | It's much appreciated! Thx :) RT @MeredithGould: I'm just going to RT everything you post! #nhdd | |
| KathyKastner | T3 I'm collecting personal stories for my app Making the best of The end(wouldn't you all like to the wiki? hint hint) #NHDD | |
| NHDD | Final few minutes of our chat, this has been incredible. Please take a second to share some closing thoughts. #nhdd | |
| AdvanceCarePlan | RT @VillageMemorial: T3 Sharing stories. Sharing ideas. Collaborating on improving the EOL experience. #NHDD | |
| DeathwDignity | T3: We're always looking for guest writers for our blog. Please DM me if you'd like to share your story/perspective. #NHDD | |
| NHDD | RT @jessicajohanna: T3 I'd like to see continued openness, support, trust & engagement w/ one another. & also more personal stories. #nhdd | |
| VillageMemorial | RT @DeathwDignity: T3: Were always looking for guest writers for our blog. Please DM me if youd like to share your story/perspective. #nhdd | |
| VillageMemorial | RT @DeathwDignity: T3: Were always looking for guest writers for our blog. Please DM me if youd like to share your story/perspective. #nhdd | |
| AdvanceCarePlan | It's about conversations. It's about decisions. It's how we care for each other. #NHDD | |
| MeredithGould | @NHDD Closing thoughts: Acknowledging the inevitability of death is part of becoming a whole, living person. Talk about it! #nhdd | |
| EOLnavigator | Ideas like this? Check out Amber! She promises to put her cheek on my cheek when I'm in a coma! http://t.co/knxfp4od #nhdd | |
| CasaHospice | Closing thought: It's wonderful to chat with so many others who share the same passion for changing the end of life experience. #nhdd | |
| VillageMemorial | Such a vital topic. So few are prepared & it's unfamiliar territory for most. #nhdd | |
| EOLnavigator | @DeathwDignity Would love to write a blog 4 u! #nhdd | |
| MeredithGould | @EOLnavigator My friend Julie promised to make sure no one sings hymns I hate! #nhdd | |
| DeathwDignity | RT @MeredithGould: Closing thoughts: Acknowledging inevitability of death is part of becoming a whole, living person. Talk about it! #NHDD | |
| DrDignity | RT @AdvanceCarePlan: It's about conversations. It's about decisions. It's how we care for each other. #NHDD | |
| ctffox | RT @MeredithGould: @NHDD Closing thoughts: Acknowledging inevitability of death is part of becoming whole, living person. Talk abt it! #NHDD | |
| DrDignity | RT @VillageMemorial: RT @DeathwDignity: T3: Were always looking for guest writers for our blog. Please DM me if youd like to share your story/perspective. #nhdd | |
| VillageMemorial | RT @CasaHospice: Closing thought: Wonderful to chat with many others who share the same passion for changing end of life experience. #nhdd | |
| KathyKastner | After energizing e-o-l chats like this.. I almost come away feeling: The End sounds like it can be so great: looking forward :) #NHDD | |
| renee_berry | The more we can all share our stories abt why advance care planning is important to us, the more people will understand: slow but sure #NHDD | |
| ctffox | @NHDD Thanks for the invite Renee-gr8 job moderating the discussion today! #NHDD | |
| SanDiegoHospice | T3: Examples of where advance care tools/planning didn't work and solutions for that #NHDD | |
| healthpsychuk | RT @EOLnavigator: @renee_berry Really important----> have 2 program yourself as a clinician to embrace goals outside your comfort zone. #nhdd | |
| PSWCanada2007 | RT @VillageMemorial: RT @CasaHospice: Closing thought: Wonderful to chat with many others who share the same passion for changing end of life experience. #nhdd | |
| EOLnavigator | Loved the chat! Thanks Renee! #nhdd | |
| KathyKastner | Thank you @Renee_Berry for gr8 and fab hosting. Thanks to all for gr8 and fab convo. Good weekend everyone! #NHDD | |
| EOLnavigator | Can't have you turning in the grave! RT @MeredithGould: @EOLnavigator My friend Julie promised to make sure no one sings hymns I hate! #nhdd | |
| NHDD | Thank you so much for participating everyone! Cheers to a new online community! Every 16th at 10a PST http://t.co/HgN1rIbp #nhdd | |
| VillageMemorial | RT @KathyKastner: After energizing EOL chats like this almost come away feeling The End sounds like it can be so great looking forward #nhdd | |
| DeathwDignity | So glad I heard about this chat, @kathykastner! Thank you for hosting, @Renee_Berry! #NHDD | |
| jessicajohanna | Excited 4 the upcoming months w/ our community! Let's keep the motivation & help others realize the power of informed health decisions #nhdd | |
| PSWCanada2007 | Thanks all, enjoyed the parts I caught! have a great day...always amazing insight #NHDD | |
| SanDiegoHospice | RT @renee_berry: The more we can all share our stories abt why advance care planning is important to us, the more people will understand: slow but sure #NHDD | |
| EOLnavigator | RT @DeathwDignity: T3: Were always looking for guest writers for our blog. Please DM me if youd like to share your story/perspective. #nhdd | |
| NHDD | RT @VillageMemorial: RT @CasaHospice: Closing thought: Wonderful to chat with many others who share the same passion for changing end of life experience. #nhdd | |
| gjosephsample | Follow the #NHDD on Twitter for end of life discussion thanks @renee_berry for tweets on this | |
| MeredithGould | @EOLnavigator Yeah, I'm doing THAT in advance! #nhdd | |
| NHDD | We sincerely appreciate your participation today, hope to see you next month to advocate for #healthcare centered around patient goals #nhdd | |
| nathankottkamp | Sorry to miss the NHDD TweetChat. Thanks to all who participated! Looking forward to the next one. Cheers, Nathan #nhdd | |
| DeathwDignity | RT @NHDD: Thank you so much for participating everyone! Cheers to a new online community! Every 16th at 10a PST http://t.co/3XJ8QCHR #NHDD | |
| NHDD | @nathankottkamp and cheers to you! Nathan is the Founder & Chair of National Healthcare Decisions Day, thanks for saying hello! #nhdd | |
| CasaHospice | RT @renee_berry: The more we can all share our stories abt why advance care planning is important to us, the more people will understand: slow but sure #NHDD | |
| VillageMemorial | RT @DeathwDignity @NHDD Thanks so much for participating! Cheers to a new online community! Every 16th at 10a PST http://t.co/F0hZ354y #nhdd | |
| jessicajohanna | Thanks @renee_berry. You are an inspirational tweet chat leader :) #nhdd | |
| renee_berry | RT @NHDD: We sincerely appreciate your participation today, hope to see you next month to advocate for #healthcare centered around patient goals #nhdd | |
| renee_berry | RT @NHDD: Thank you so much for participating everyone! Cheers to a new online community! Every 16th at 10a PST http://t.co/HgN1rIbp #nhdd | |
| EOLnavigator | @renee_berry @NHDD It's on the calendar now! See you next time! #nhdd |
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