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| From: | Sun Oct 16 10:00:00 PDT 2011 |
| To: | Sun Oct 16 11:15:00 PDT 2011 |
| NHDD | For the next hour we'll be chatting about advance care planning http://t.co/ol9uvxDO all are welcome to join the conversation at #NHDD | |
| NHDD | Hello & Welcome to the #NHDD TweetChat about advance care planning, please take a minute to introduce yourself #NHDD | |
| hollyby | For the next hour I'll be tweeting about advance care planning. Join us. http://t.co/m9YA03CT #Nhdd | |
| renee_berry | RT @hollyby: For the next hour Ill be tweeting about advance care planning. Join us. http://t.co/zwucpCsv #nhdd | |
| nathankottkamp | It's six months to NHDD. Start your planning now no matter how small. #NHDD www.NHDD.org | |
| NHDD | Hi @hollyby & @nathankottkamp, Thanks for joining us #NHDD | |
| renee_berry | --> passionate about advance directives & early palliative care, work @gobemore #nhdd | |
| NHDD | @hollyby & @nathankottkamp it might be a small group this morning, we'll get started with T1 in just a few minutes #NHDD | |
| jessicajohanna | Hi all sorry I'm late, Twitter wasn't loading but now I'm here! #nhdd | |
| NHDD | @jessicajohanna Hi Jessica, thanks for joining the chat, we're taking a few more minutes to do introductions #nhdd | |
| hollyby | Holly Yang, #hospice and #palliative medicine (#hpm) doc from @SanDiegoHospice. All tweets are my own. #nhdd | |
| hollyby | @NHDD I'm in Chicago for a meeting, so may be intermittent in my tweets, trying to do it from my phone. :) #nhdd | |
| NHDD | @hollyby @jessicajohanna @renee_berry @nathankottkamp, thanks for joining, lets get started with T1 #NHDD | |
| NHDD | Topic 1 What are ways we can help advance directives be seen as a part of quality healthcare & not a geriatric issue? #NHDD | |
| jessicajohanna | I have a MSc in Anthropology so no background in healthcare except for personal experience w/ #hospice #nhdd | |
| hollyby | RT @NHDD: Topic 1 What are ways we can help advance directives be seen as a part of quality healthcare & not a geriatric issue? #nhdd | |
| renee_berry | RT @NHDD Topic 1 What are ways we can help advance directives be seen as a part of quality healthcare & not a geriatric issue? #hpm #nhdd | |
| renee_berry | T1 I come across this often when I tell people I'm passionate about advance care planning, they direct the conversation to geriatrics #nhdd | |
| HPMAdvocate | Newbie and here to learn. #nhdd | |
| hollyby | T1: If they are a normal part of healthcare, it won't be a geriatric or crisis issue. Someday it will be a part of the annual visit. #nhdd | |
| renee_berry | @hollyby I hope so! #nhdd | |
| hollyby | @HPMAdvocate Welcome!!! #nhdd | |
| renee_berry | @HPMAdvocate awesome newbies are welcome! #nhdd | |
| NHDD | RT @hollyby: T1: If they are a normal part of healthcare, it won't be a geriatric or crisis issue. Someday it will be a part of the annual visit. #nhdd | |
| jodyms | RT @renee_berry: RT @hollyby: For the next hour Ill be tweeting about advance care planning. Join us. http://t.co/zwucpCsv #nhdd | |
| HPMAdvocate | @renee_berry Thanks! #nhdd | |
| renee_berry | @hollyby do you get resistance to the concept that advance care planning will be part of an annual visit? #nhdd | |
| NHDD | welcome to the chat RT @hpmadvocate: Newbie and here to learn. #nhdd | |
| jessicajohanna | Is there a clear definition of advance directives? Also, there has to be more education abt it- knowing that being prepared is ageless #nhdd | |
| NHDD | Thanks for joining us Jody! Great to see you @jodyms #NHDD | |
| hollyby | @renee_berry A couple major issues: time for discussion (may not fit easily into a 15 min appt) & HCP communications training #nhdd | |
| NHDD | T1 What are ways we can help advance directives be seen as a part of quality healthcare & not a geriatric issue? #NHDD | |
| nathankottkamp | Another key part of this-for all ages-is being sure that younger generations ASK their elders. Don't wait for them to bring it up. #nhdd | |
| hollyby | @jodyms Hey Jody! Great to see you! #nhdd | |
| hollyby | @renee_berry Public awareness is also key, so good reason for #nhdd | |
| renee_berry | @hollyby understandably with time. Do you think there are opportunities for others to help facilitate an understanding b4 MD visit? #nhdd | |
| NHDD | RT @nathankottkamp: Another key part of this-for all ages-is being sure that younger generations ASK their elders. Don't wait for them to bring it up. #nhdd | |
| jodyms | @hollyby Happy Sunday! Sadly - I am multitasking #nhdd | |
| NHDD | RT @hollyby: @renee_berry Public awareness is also key, so good reason for #nhdd | |
| renee_berry | @jodyms that's ok, we know you're a great advocate for advance directives so we are happy to see you even if it's for a few minutes! #nhdd | |
| jodyms | @NHDD @hollyby @nathankottkamp Count me in. You guys are always wonderful. #nhdd | |
| renee_berry | MT @jessicajohanna there has to be more education about advance directives- being prepared is ageless #nhdd | |
| HPMAdvocate | T1: Workshops/seminars at healthcare office would be great. 15min doc appts don't allow time for thoughtful discussion. #nhdd | |
| NHDD | we're going to move to T2 soon, closing thoughts on embracing advance care planning for all ages? #NHDD | |
| renee_berry | RT @HPMAdvocate: T1: Workshops/seminars at healthcare office would be great. 15min doc appts don't allow time for thoughtful discussion. #nhdd | |
| hollyby | @renee_berry Pre-doctor visit info, questions to think about. #Nhdd | |
| renee_berry | T1 I'm just thrilled to hear a doctor say http://t.co/NGDI1QFc The more normal we can make these conversations the better #NHDD | |
| jessicajohanna | Agree! MT @HPMAdvocate Seminars at healthcare office would be great. 15min doc appts don't allow time for thoughtful discussion #nhdd | |
| renee_berry | T1 & the more we can facilitate health professionals being available to answer family questions the better! #nhdd | |
| renee_berry | for sure! Could be an awesome resource RT @hollyby: @renee_berry Pre-doctor visit info, questions to think about #nhdd | |
| NHDD | Topic 2 Do you come across healthcare professionals who don't see the importance of advance directives? How do you approach them? #NHDD | |
| jodyms | @renee_berry T1: AND the more we see articles (like Gawande's) showing what end-of-life costs can be when no plan in place. #nhdd | |
| renee_berry | RT @jodyms: @renee_berry T1: AND the more we see articles (like Gawande's) showing what end-of-life costs can be when no plan in place. #nhdd | |
| renee_berry | @jodyms financial & emotional cost #nhdd | |
| jodyms | @renee_berry T1: there are also sig cultural differences that need to be addressed community by community; grass roots work is needed #nhdd | |
| renee_berry | @jodyms grassroots is crucial for public education about advance directives #nhdd | |
| renee_berry | RT @jodyms: @renee_berry T1: there are also sig cultural differences that need to be addressed community by community; grass roots work is needed #nhdd | |
| renee_berry | RT @NHDD: Topic 2 Do you come across healthcare professionals who don't see the importance of advance directives? How do you approach them? #NHDD | |
| jodyms | @nhdd T1: It's also part of widespread denial of mortality. We DON't live forever, as Steve Jobs so eloquently addressed at Stanford #nhdd | |
| hollyby | Sorry, lurking now. At an appt. Thanks all! #Nhdd | |
| renee_berry | @hollyby thanks holly #nhdd | |
| renee_berry | RT @jodyms: @nhdd T1: It's also part of widespread denial of mortality. We DON't live forever, as Steve Jobs so eloquently addressed at Stanford #nhdd | |
| jodyms | @renee_berry So I'm not sure how you do the grass roots work in this regard; I'll put that in the "to ponder" file. Seriously:) #nhdd | |
| jessicajohanna | T2 No doctor has ever mentioned advance directives to me. I only know about it bc of #nhdd! | |
| DefiningChoices | Sorry I'm late jumping in. #NHDD | |
| Kaviraj2 | RT @jodyms: @nhdd T1: It's also part of widespread denial of mortality. We DON't live forever, as Steve Jobs so eloquently addressed at Stanford #nhdd | |
| jodyms | RT @renee_berry: T1 I'm just thrilled to hear a doctor say http://t.co/NGDI1QFc The more normal we can make these conversations the better #NHDD | |
| renee_berry | @jodyms a challenge is there is a need to produce education materials for a large amount of specialties for quality understanding #nhdd | |
| jodyms | @NHDD T1: I hate to be banal but it's like life insurance. You have one in place because you will need it someday. #nhdd. | |
| DefiningChoices | I too have never had a doctor mention advance directives to me and I'm 40. I have annual check up's and more. #NHDD | |
| jessicajohanna | RT @jodyms: @NHDD T1: I hate to be banal but it's like life insurance. You have one in place because you will need it someday. #nhdd. | |
| NHDD | Not to worry, thanks for joining! We're just starting to talk about T2 RT @definingchoices: Sorry I'm late jumping in #NHDD | |
| NHDD | @kaviraj2 hi, good to see you on the chat! #NHDD | |
| DefiningChoices | I want this subject to become routine in medical care and behavioral healthcare. I've been learning more about Advance Directives. #NHDD | |
| renee_berry | @jodyms I think that makes sense for sure. #nhdd | |
| renee_berry | @DefiningChoices isn't that incredible? For the amount of #healthcare organizations discussing 'patient centered care' #nhdd | |
| jodyms | @renee_berry @nhdd have the #hpm professional orgs ever partnered w/large national orgs (heart disease, diabetes, cancer, etc)? #nhdd | |
| HPMAdvocate | T2: When I checkin to a doc appt, they ask if I have a power of attorney for HC form. I don't think docs ask unless one is dying?? #nhdd | |
| renee_berry | what is "patient-centered care" with out advance directives? #mystery to me #nhdd | |
| LadyEleanorA | RT @jodyms: @nhdd T1: It's also part of widespread denial of mortality. We DON't live forever, as Steve Jobs so eloquently addressed at Stanford #nhdd | |
| renee_berry | @jodyms I do believe there have been some efforts, @NathanKottkamp would know more about that #nhdd | |
| DefiningChoices | @renee_berry Yes, it's shocking how overlooked it is until last minute a doctor in an emergency dept.is asking for it. #NHDD | |
| HPMAdvocate | Agree w/ @DefiningChoices "I want this subject to become routine in medical care and behavioral healthcare..." #nhdd | |
| NHDD | RT @DefiningChoices: I want this subject to become routine in medical care and behavioral healthcare. I've been learning more about Advance Directives. #NHDD | |
| NHDD | RT @jessicajohanna: T2 No doctor has ever mentioned advance directives to me. I only know about it bc of #nhdd! | |
| DefiningChoices | @NHDD TY #NHDD | |
| DefiningChoices | Seconded! RT @jessicajohanna: T2 No doctor has ever mentioned advance directives to me. I only know about it bc of #nhdd! #NHDD | |
| renee_berry | @DefiningChoices agree. I think it's a systems failure that no part of the system is taking ownership towards fixing #NHDD | |
| DefiningChoices | I'm a therapist and since learning about them, I talk to my clients about them. I didn't even learn about them in grad school. #NHDD | |
| renee_berry | @HPMAdvocate sometimes they ask outside of that, but clearly not often #NHDD | |
| renee_berry | RT @HPMAdvocate: T2: When I checkin to a doc appt, they ask if I have a power of attorney for HC form. I don't think docs ask unless one is dying?? #nhdd | |
| DefiningChoices | I'd feel uncomfortable Re: Advance Directives w/out some education about them when provided one at last minute in an ED~ #NHDD | |
| jodyms | @jessicajohanna T2: I was asked when I was reviewing admission and surgical consent forms at MD Anderson. That made it all very real. #nhdd | |
| DefiningChoices | ...I might not even be coherent to complete one at that time. #NHDD | |
| DefiningChoices | ED (emergency department) #NHDD | |
| renee_berry | @jodyms that's been the only time I see advance directives discussed, is for hospital admissions for surgery #nhdd | |
| renee_berry | @jodyms but the "conversation" is still even then, far too often, please put a name here & sign here #nhdd | |
| renee_berry | @jodyms instead of helping people understand the decisions & the meaning behind those decisions #nhdd | |
| renee_berry | RT @DefiningChoices: I'd feel uncomfortable Re: Advance Directives w/out some education about them when provided one at last minute in an ED~ #NHDD | |
| renee_berry | RT @HPMAdvocate: Agree w/ @DefiningChoices "I want this subject to become routine in medical care and behavioral healthcare..." #nhdd | |
| jessicajohanna | T2 I plan to discuss advance directives w/ my doc next month when I have a check-up. I'm curious how she'll respond to me #nhdd | |
| jodyms | @DefiningChoices T2 - could also become part of a hospital/medical center's rotating list of classes. I've never seen one sponsored. #nhdd | |
| DefiningChoices | @jessicajohanna Fantastic idea!! I'm going to do it too. :-D #NHDD | |
| NHDD | We're getting ready for T3 & closing thoughts for #nhdd today | |
| NHDD | @jessicajohanna awesome #nhdd | |
| NHDD | RT @jessicajohanna: T2 I plan to discuss advance directives w/ my doc next month when I have a check-up. I'm curious how she'll respond to me #nhdd | |
| NHDD | T3 What are some ideas/ways we can help this #NHDD chat grow to increase awareness about the importance of advance care planning? | |
| renee_berry | RT @NHDD: T3 What are some ideas/ways we can help this #NHDD chat grow to increase awareness about the importance of advance care planning? | |
| DefiningChoices | @jodyms I think our educating and advocating for Advance Directives could help break some stigma. Let's hold providers responsible 2 #NHDD | |
| renee_berry | @DefiningChoices agree, I was thinking about inviting some providers to participate in this chat, or host it, would be interesting #nhdd | |
| jessicajohanna | T3 Tweet about advance directives & this chat w/ links so our followers can be led directly to a quality source of info #nhdd | |
| DefiningChoices | T3) We could post info re: the chat on our facebook page, Twitter, and hang up info about it at the library, college, hospital.. #NHDD | |
| renee_berry | @jessicajohanna I think that is a really important thing about this chat, helping raise awareness towards Quality Info! great point #nhdd | |
| renee_berry | @DefiningChoices that's awesome. Those are great ideas! #nhdd | |
| NHDD | RT @DefiningChoices: T3) We could post info re: the chat on our facebook page, Twitter, and hang up info about it at the library, college, hospital.. #NHDD | |
| DefiningChoices | RT @jessicajohanna T3 Tweet re: advance directives & this chat w/ links so our followers can b led directly 2 a quality source of info #NHDD | |
| NHDD | We're getting to the last few minutes of our chat, please take a second to share any closing thoughts #nhdd | |
| DefiningChoices | @renee_berry I like it. Let's share the info with community partners/providers directly. #NHDD | |
| renee_berry | @DefiningChoices sounds like you would be interested in http://t.co/J7HE2SBH :) #nhdd | |
| DefiningChoices | @renee_berry checking out the link. thanks. #NHDD | |
| NHDD | Thanks everyone for joining the conversation today for #NHDD hope to see you next month 11/16 10a PST | |
| Kaviraj2 | RT @jodyms: @renee_berry T1: there are also sig cultural differences that need to be addressed community by community; grass roots work is needed #nhdd | |
| DefiningChoices | T3: How about homemade business card look-a-likes with statement about Advance Directives & links to NHDD info/social media? #NHDD | |
| renee_berry | heard a rumor @engagewithgrace might host :) RT @NHDD Thanks everyone for joining today for #NHDD hope to see you next month 11/16 10a PST | |
| DefiningChoices | RT @jodyms: @renee_berry T1: sig cultural differences that need to be addressed community by community; grass roots work is needed #NHDD | |
| jessicajohanna | I'll see you all on Nov 16, 10am PST! #nhdd | |
| DefiningChoices | Thank you for having this live chat for discussion on an under talked about impt matter. I anticipate joining in on 11/16/2011 #NHDD | |
| HPMAdvocate | Great ideas. Thanks all! #nhdd | |
| NHDD | @DefiningChoices it wouldn't be possible with out interesting people like you advocating & participating. Hope to see you next month! #nhdd | |
| NHDD | RT @DefiningChoices: Thank you for having this live chat for discussion on an under talked about impt matter. I anticipate joining in on 11/16/2011 #NHDD | |
| Kaviraj2 | RT @renee_berry: for sure! Could be an awesome resource RT @hollyby: @renee_berry Pre-doctor visit info, questions to think about #nhdd | |
| Kaviraj2 | RT @renee_berry: T1 & the more we can facilitate health professionals being available to answer family questions the better! #nhdd | |
| NHDD | RT @jessicajohanna I'll see you all on Nov 16, 10am PST! http://t.co/ol9uvxDO #nhdd | |
| DefiningChoices | @NHDD TY for the compliment!! Made me smile :-D Thanks for hosting for #NHDD |
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