Content from Twitter
| From: | Wed Nov 16 10:00:00 PST 2011 |
| To: | Wed Nov 16 11:15:00 PST 2011 |
| NHDD | Hello & Welcome to the #NHDD TweetChat about advance care planning. Please take a few minutes to introduce yourself & where you're from. | |
| NHDD | (we've had a few twitter difficultites this morning, not sure if others may be experiencing the same, but we're here!) #NHDD | |
| KathyKastner | Hi all doing double tweet chat duty today.. can't reisist anytthin/everything to do with #NHDD | |
| renee_berry | --> passionate abt having advance care planning discussions early & often, especially educating young adults about advance directives #NHDD | |
| DeathwDignity | Hooray! #nhdd chat time! #nhdd | |
| jessicajohanna | Hi everyone, making my own health decisions is an important part of taking care of myself #nhdd | |
| NHDD | @ctsinclair @afternoonnapper @elderpages @KathyKastner @JessicaJohanna Welcome! Thanks for joining us this morning #NHDD | |
| jakekraft | Hi all. I'm Jake Kraft, from Seattle, WA, founder of @Qualtonomy, a web-based tool to help people share their wishes. #NHDD #NHDD | |
| AfternoonNapper | Fixing lunch! Thanks for the welcome. BRB. #NHDD | |
| DeathwDignity | We provide information, education, research & support for the preservation, implementation & promotion of Death with Dignity laws. #nhdd | |
| NHDD | @JakeKraft & @DeathwDignity thanks too for joining us! #NHDD | |
| NHDD | Today we're excited for topics by @EngageWithGrace in honor of their awesome initiative around the corner http://t.co/Y7TPneJd #NHDD #s4pm | |
| NHDD | Topic 1: What are some roadblocks & challenges you have winessed or experienced with advance care planning? via @EngageWithGrace #NHDD | |
| DeathwDignity | RT @NHDD: Today were excited for topics by @EngageWithGrace in honor of their awesome initiative http://t.co/sX0tSW4K #nhdd | |
| renee_berry | RT @NHDD T1 What are some roadblocks & challenges you have winessed or experienced with advance care planning? via @EngageWithGrace #NHDD | |
| jessicajohanna | RT @NHDD: Topic 1: What are some roadblocks & challenges you have winessed or experienced with advance care planning? via @EngageWithGrace #NHDD | |
| DeathwDignity | T1: Death being treated as taboo by our society makes it difficult to talk about dying let alone *how* we want to die. #nhdd | |
| renee_berry | T1 I just experienced some roadblocks last night, advance directives came up at dinner about if they were updated, family was stressed #NHDD | |
| jessicajohanna | A major roadblock I've seen is lack of information provided from doctors to patients, family members #nhdd | |
| renee_berry | @DeathwDignity the topic is so taboo & yet as people experience end of life with their family, it is so emotionally intensive #NHDD | |
| EngageWithGrace | RT @renee_berry: RT @NHDD T1 What are some roadblocks & challenges you have winessed or experienced with advance care planning? via @EngageWithGrace #NHDD | |
| AfternoonNapper | RT @DeathwDignity: Death being treated as taboo by our society makes it difficult to talk abt dying let alone *how* we want to die. #NHDD | |
| Allergic2Snow | RT @DeathwDignity: T1: Death being treated as taboo by our society makes it difficult to talk about dying let alone *how* we want to die. #nhdd | |
| renee_berry | @AfternoonNapper I know you mentioned something a few weeks ago with some roadblocks from your primary care doctor right? #NHDD | |
| Obfusticate | RT @DeathwDignity: We provide information, education, research & support for the preservation, implementation & promotion of Death with Dignity laws. #nhdd | |
| DeathwDignity | @renee_berry Indeed. Just posted a personal story about how discussing wishes changes how we grieve: http://t.co/tGLGfjRT #nhdd | |
| TinaC519 | RT @DeathwDignity: T1: Death being treated as taboo by our society makes it difficult 2 talk about dying let alone *how* we want 2die. #nhdd | |
| AfternoonNapper | @renee_berry I asked my PCP about palliative care. He was rather dismissive of the idea. I'm not sure exactly why... perhaps my age? #NHDD | |
| jessicajohanna | RT @DeathwDignity: T1: Death being treated as taboo by our society makes it difficult to talk about dying let alone *how* we want to die. #nhdd | |
| teaminspire | RT @DeathwDignity: RT @NHDD: Today were excited for topics by @EngageWithGrace in honor of their awesome initiative http://t.co/sX0tSW4K #nhdd | |
| ctsinclair | Intro: Christian Sinclair, assoc med dir with @kchospice. Proud supporter of #NHDD | |
| NHDD | Thanks for joining in CT! RT @ctsinclair: Intro: Christian Sinclair, assoc med dir with @kchospice. Proud supporter of #NHDD | |
| AfternoonNapper | As for advance planning, my major roadblock has been the lack of availability of what I want for final burial plans. #NHDD | |
| ctsinclair | RT @NHDD: Topic 1: What are some roadblocks & challenges you have winessed or experienced with advance care planning? via @EngageWithGrace #NHDD | |
| Pallimed | RT @NHDD: Topic 1: What are some roadblocks & challenges you have winessed or experienced with advance care planning? via @EngageWithGrace #NHDD | |
| NHDD | @teaminspire @TinaC519 @Obfusticate @Allergic2Snow thanks for your RT's, please don't hesitate to hop in for our chat! #NHDD | |
| DeathwDignity | RT @AfternoonNapper: As for advance planning, major roadblock has been lack of availability of what I want for final burial plans. #nhdd | |
| jessicajohanna | Ironically many people I know think "advance care planning" is something they don't have to do in "advance" so they remain uninformed #nhdd | |
| DefiningChoices | is here. sorry i'm late.
#nhdd | |
| DeathwDignity | @AfternoonNapper Curious, what do you want for your final burial plans? #nhdd | |
| renee_berry | @AfternoonNapper have there been many or one roadblock in particular? #NHDD | |
| renee_berry | RT @AfternoonNapper: As for advance planning, my major roadblock has been the lack of availability of what I want for final burial plans. #NHDD | |
| ctsinclair | Topic 1: #NHDD procrastination is one of the biggest barriers for adv dir. Most agree they are important. But say i'll do it later | |
| AfternoonNapper | I'm interested in green burial. There's only one local cemetery that offers it—and it's not very pretty. :) Next nearest is in SC. #NHDD | |
| NHDD | No worries, thanks for joining in! RT @DefiningChoices: is here. sorry im late. #NHDD | |
| DeathwDignity | RT @ctsinclair: T1: procrastination is one of the biggest barriers for adv dir. Most agree they are important. But say ill do it later #nhdd | |
| DefiningChoices | RT @NHDD Topic 1: Roadblocks & challenges you have winessed or experienced with advance care planning? via @EngageWithGrace #nhdd | |
| KathyKastner | T1 #NHDD My belief is that procrst. is bcuz we don't know enuf abt #eol options | |
| AfternoonNapper | Granted I'm not going to need to enjoy the scenery, but I would like for my family to able to visit in a pleasant setting if they want #NHDD | |
| jorawstron | RT @AfternoonNapper: RT @DeathwDignity: Death being treated as taboo by our society makes it difficult to talk abt dying let alone *how* we want to die. #NHDD | |
| DefiningChoices | was guilty her RT @ctsinclair T1: procrastination is one of the biggest barriers for adv dir. Agree important. But say ill do it later #nhdd | |
| AfternoonNapper | There's also the issue of finding a funeral home that is willing to work with green burial requirements. #NHDD | |
| renee_berry | T1 Our healthcare system doesn't have a part of the system that's dedicated to advance directives, assume others take care of it #NHDD | |
| DeathwDignity | Love it! RT @AfternoonNapper: Granted Im not going to need to enjoy the scenery, but I'd like my family to visit a pleasant setting #nhdd | |
| DefiningChoices | meant to say was guilty "here" #nhdd | |
| Qualtonomy | #NHDD T1: ADs aren't very convenient to complete and it's cumbersome to initiate the very important conversation with family & others #NHDD | |
| DeathwDignity | Ironically enough, me too. Show of hands. How many here have created adv dir? RT @DefiningChoices: meant to say was guilty "here" #nhdd | |
| renee_berry | RT @Qualtonomy: #NHDD T1: ADs aren't very convenient to complete and it's cumbersome to initiate the very important conversation with family & others #NHDD | |
| jorawstron | #NHDD I feel that I'm adding to fear and stress for family and friends by discussing #eol wishes | |
| ctsinclair | RT @AfternoonNapper: RT @DeathwDignity: Death being treated as taboo by our society makes it difficult to talk abt dying let alone *how* we want to die. #NHDD | |
| AfternoonNapper | @Qualtonomy You're right about ADs not being easy to complete. There's a lot of legalese that the average person may not fully grasp.
#NHDD | |
| KathyKastner | RT @Qualtonomy: #NHDD T1: ADs aren't very convenient to complete and it's cumbersome to initiate the very important conversation with family & others #NHDD | |
| DefiningChoices | checked out what green burial was~ new to me > http://t.co/BTh1Grg8 #nhdd | |
| AfternoonNapper | @DeathwDignity I'm on my second AD/HCPOA. Need to update it again! #NHDD | |
| NHDD | RT @jorawstron: @NHDD I feel that Im adding to fear and stress for family & friends by discussing #eol wishes #NHDD | |
| jessicajohanna | When I did my advance directive I repeatedly thought of what my family would think/say. I think ADs are not complete w/o conversations #nhdd | |
| DeathwDignity | @AfternoonNapper @Qualtonomy and it seems very cut in stone for decisions which may be more flexible. #nhdd | |
| equijada | @NHDD T1 Perhaps it's because it's associated w/ death. What if we used words on parallel with living will, family trust etc. #nhdd | |
| renee_berry | @jorawstron understandably! I think that's a normal thing to fear, something I constantly struggle with #NHDD | |
| jorawstron | #NHDD I have an advance directive, but would appreciate experienced input to improve it and support me&husband | |
| LovelyMariaG | A1: I think it's safe to say that the biggest roadblock is where families will get the finances during these hard times #NHDD | |
| CasaHospice | @Qualtonomy Our foundation offers Five Wishes, from Aging with Dignity, and people love how easy to understand it is. #NHDD | |
| SanDiegoHospice | T1: Many of our families have to have the discussion multiple times before completing an AD. There's a lot of "shifting" in thought. #nhdd | |
| AfternoonNapper | @DefiningChoices Glad you could research green burial! This is where I am currently interested in http://t.co/S8FCKeLQ. #NHDD | |
| DeathwDignity | RT @SanDiegoHospice: T1: Many families have to have the discussion mult times before completing AD. A lot of shifting in thought. #nhdd | |
| Pallimed | RT @DefiningChoices: checked out what green burial was~ new to me > http://t.co/BTh1Grg8 #nhdd | |
| renee_berry | @DeathwDignity @AfternoonNapper @Qualtonomy seems to b a lot of variety, I see a lot of grey & often hear people treat it as blk&white #NHDD | |
| NHDD | RT @SanDiegoHospice: T1: Many of our families have to have the discussion multiple times before completing an AD. There's a lot of "shifting" in thought. #nhdd | |
| AfternoonNapper | I recommend the Green Burial Council as a resource for those who are interested in learning more. http://t.co/QOryjTe8 #NHDD | |
| KathyKastner | RT @DeathwDignity: RT @SanDiegoHospice: T1: Many families have to have the discussion mult times before completing AD. A lot of shifting in thought. #nhdd | |
| DefiningChoices | RT @AfternoonNapperI recommend Green Burial Council as a resource for those who are interested in learning more. http://t.co/n7WHSdIK #nhdd | |
| Qualtonomy | RT @renee_berry: seems to b a lot of variety, I see a lot of grey & often hear people treat it as blk&white #NHDD | |
| jessicajohanna | Same, my mom asked me if I was feeling ok @jorawstron I feel that I'm adding to fear & stress for family by discussing #eol wishes #nhdd | |
| NHDD | RT @equijada @NHDD T1 Perhaps its because its associated w/ death. What if we used words on parallel w/living will, family trust etc #NHDD | |
| ctsinclair | RT @jorawstron: #NHDD I have an advance directive, but would appreciate experienced input to improve it and support me&husband | |
| AfternoonNapper | @renee_berry Just because one writes an AD doesn't mean that one can't change his or her mind about it. #NHDD | |
| ctsinclair | RT @jessicajohanna: When I did my advance directive I repeatedly thought of what my family would think/say. I think ADs are not complete w/o conversations #nhdd | |
| NHDD | We're about to move to T2 so please take a minute to wrap up thoughts on advance care planning roadblocks & challenges #NHDD | |
| DeathwDignity | RT @AfternoonNapper: @renee_berry Just because one writes an AD doesnt mean that one cant change his or her mind about it. #nhdd | |
| aliciabloom | RT @NHDD: Topic 1: What are some roadblocks & challenges you have winessed or experienced with advance care planning? via @EngageWithGrace #NHDD | |
| jorawstron | #NHDD I found myself thinking that funerals are partly for those left behind - I want them to feel comforted by my choices | |
| ctsinclair | @AfternoonNapper updating adv dir is always good! #nhdd | |
| KathyKastner | #NHDD FWIW: I start covos by talking about aspects of my AD plan - e.g. to have tequlia and choc covered almonds. | |
| AfternoonNapper | @jorawstron @jessicajohanna Good luck w/ your families understanding your needs/wishes—decisions are for you & for them=peace of mind. #NHDD | |
| renee_berry | so true! RT @AfternoonNapper @renee_berry Just because one writes an AD doesnt mean that one cant change his or her mind about it. #NHDD | |
| DeathwDignity | Love this! RT @KathyKastner: #NHDD FWIW: I start covos w/aspects of my AD plan - e.g. to have tequlia and choc covered almonds. #nhdd | |
| AfternoonNapper | RT @jorawstron: #NHDD I found myself thinking funerals are partly for those left behind - I want them to feel comforted by my choices #NHDD | |
| jessicajohanna | @AfternoonNapper Thanks! #nhdd | |
| aliciabloom | MSW, LSW in #hospice & #palliative care. supporter of #NHDD. passionate re: patient empowerment that results from advance care planning. | |
| renee_berry | RT @jorawstron: #NHDD I found myself thinking that funerals are partly for those left behind - I want them to feel comforted by my choices | |
| renee_berry | @jorawstron awesome!!! #NHDD | |
| KathyKastner | RT @DeathwDignity: RT @AfternoonNapper: @renee_berry Just because one writes an AD doesnt mean that one cant change his or her mind about it. #nhdd | |
| AfternoonNapper | @jessicajohanna I sent my parents my burial plans via email. It didn't go thru. Now Mom is asking me to resend/print out. Progress. #NHDD | |
| NHDD | Topic 2: What are some pointers/tips for a successful advance directive conversation with family? via @EngageWithGrace #NHDD | |
| DeathwDignity | Yes!RT @jorawstron: #NHDD I found myself thinking funerals are partly for those left behind. Want them to feel comforted by my choices #nhdd | |
| SanDiegoHospice | @jorawstron Yes, many pts want that for their loved ones - to feel comforted by their choices when they are no longer there. #nhdd | |
| renee_berry | @aliciabloom hi Alicia!! so glad you're here! #NHDD | |
| aliciabloom | patents need education & compassionate support to guide them through advance care planning. otherwise it's daunting & scary. #NHDD | |
| AfternoonNapper | @NHDD Be honest. #NHDD | |
| jessicajohanna | @AfternoonNapper Good to hear! Taking small steps forward is still progress #nhdd | |
| renee_berry | @NHDD I may be all ears on this topic because my "have the talk" attempt was so unsuccessful last night (sigh) #NHDD | |
| renee_berry | RT @NHDD: Topic 2: What are some pointers/tips for a successful advance directive conversation with family? via @EngageWithGrace #NHDD | |
| jorawstron | #NHDD I try to make sure I initiate these conversations when I'm well (and look good). Hospital ICU is not an ideal place. | |
| NHDD | RT @AfternoonNapper: @NHDD Be honest. #NHDD | |
| aliciabloom | @renee_berry hi! stopping by in between consults and happy to be here #NHDD | |
| DeathwDignity | RT @NHDD: Topic 2: What are some pointers/tips for a successful advance directive conversation with family? via @EngageWithGrace #nhdd | |
| AfternoonNapper | @renee_berry Awww. Can you share what happened/why it was unsuccessful? #NHDD | |
| jessicajohanna | RT @NHDD: Topic 2: What are some pointers/tips for a successful advance directive conversation with family? via @EngageWithGrace #NHDD | |
| jorawstron | RT @aliciabloom: patents need education & compassionate support to guide them through advance care planning. otherwise it's daunting & scary. #NHDD | |
| aliciabloom | RT @NHDD: Topic 2: What are some pointers/tips for a successful advance directive conversation with family? via @EngageWithGrace #NHDD | |
| NHDD | @jorawstron great point, it's important we start with ourselves, how do we feel about this issue #NHDD | |
| NHDD | RT @jorawstron: #NHDD I try to make sure I initiate these conversations when I'm well (and look good). Hospital ICU is not an ideal place. | |
| CasaHospice | @NHDD @EngageWithGrace Create an open, safe environment. Full, undivided attention. Remove outside distractions. #NHDD | |
| DeathwDignity | T2: Make sure you have a good amount of time set aside to explore different aspects of #eolc planning. #nhdd | |
| renee_berry | RT @CasaHospice: @NHDD @EngageWithGrace Create an open, safe environment. Full, undivided attention. Remove outside distractions #NHDD | |
| AfternoonNapper | I began my planning on my own. When it came time to share, I told family members "I need to talk about this w/ you. Please let me." #NHDD | |
| aliciabloom | framing the advance directive discussion is critical. sometimes it's more about how we say things than what we actually say. #NHDD | |
| renee_berry | @AfternoonNapper my family member was in the hospital last week, so I witnessed some poor attempts by MD's to talk about AD #NHDD | |
| jessicajohanna | T2 Telling friends & family how important these decisions are to you is a way of helping them listen & understand #nhdd | |
| ctsinclair | RT @NHDD: Topic 2: What are some pointers/tips for a successful advance directive conversation with family? via @EngageWithGrace #NHDD | |
| renee_berry | @AfternoonNapper so this week, now that fam is home & safe, tried to bring it up at dinner. Was going well until.. #NHDD | |
| LovelyMariaG | It should be discussed before the family member crosses over that line to make the whole family more comfortable rather than pressured #NHDD | |
| jorawstron | #NHDD I try to make it a mixture of practical and emotional. Also find out what the other person wants for themselves. Not just about me. | |
| renee_berry | @AfternoonNapper person who was pt said he understood, wanted to set a date to write everything down & wanted to discuss more later #NHDD | |
| AfternoonNapper | @LovelyMariaG You are absolutely right. Doing an AD before it is "needed" takes away a lot of the stress. #NHDD | |
| renee_berry | @AfternoonNapper I was satisfied, was on the radar, people open, but another fam member pushed the convo when I think pt needed space #NHDD | |
| KathyKastner | RT @jessicajohanna: When I did my advance directive I repeatedly thought of what my family would think/say. I think ADs are not complete w/o conversations #nhdd | |
| NHDD | RT @AfternoonNapper: @LovelyMariaG You are absolutely right. Doing an AD before it is "needed" takes away a lot of the stress. #NHDD | |
| AfternoonNapper | @renee_berry Ahhhh... yeah, pushy doesn't really work with conversations about death. #NHDD | |
| renee_berry | RT @LovelyMariaG: It should be discussed before the family member crosses over that line to make the whole family more comfortable rather than pressured #NHDD | |
| aliciabloom | advance directives: about maintaining control of treatment & being empowered. gifts to our families and guides to clinicians #NHDD | |
| Qualtonomy | T2: Explain to fam that if you can't make med decisions on your own, ADs will give them peace of mind and help them w/ tough decisions #NHDD | |
| DeathwDignity | RT @aliciabloom: ADs: about maintaining control of treatment & being empowered. gifts to our families and guides to clinicians #nhdd | |
| AfternoonNapper | I must give thank and give acknowledgment to Wake Forest Baptist Medical University for helping my family have our first AD talk. #NHDD | |
| CasaHospice | @LovelyMariaG Discussing before a crisis would be the ideal solution. #NHDD | |
| jessicajohanna | RT @Qualtonomy: T2: Explain to fam that if you can't make med decisions on your own, ADs will give them peace of mind and help them w/ tough decisions #NHDD | |
| jorawstron | #NHDD Remember that it doesn't have to be just one conversation. These things need time and space for all involved | |
| NHDD | RT @aliciabloom advance directives abt maintaining control of treatment &being empowered. gifts to our families & guides to clinicians #NHDD | |
| AfternoonNapper | I was 25 when I first created an AD and HCPOA. A specific hospital staff member was assigned to discuss the topic with patients. #NHDD | |
| KathyKastner | RT @jorawstron: #NHDD Remember that it doesn't have to be just one conversation. These things need time and space for all involved | |
| CasaHospice | RT @NHDD: RT @aliciabloom advance directives abt maintaining control of treatment &being empowered. gifts to our families & guides to clinicians #NHDD | |
| DeathwDignity | Our ideas will likely change the more we talk. RT @jorawstron: #NHDD Remember that it doesnt have to be just one conversation. #nhdd | |
| renee_berry | RT @drpippa Study from Sweden -Pts given info abt death & end of life have better care and less anxiety #hpm http://t.co/fldeZJg6 #NHDD | |
| AfternoonNapper | The weirdest/most awkward part of the process was having random witnesses in my hospital room to sign my plans. #NHDD | |
| AfternoonNapper | I would recommend that if one can have a more intimate relationship with their legal witnesses, to do so. #NHDD | |
| DeathwDignity | T2: framing the discussion around what's acceptable to you could be a good way to figure out to what ends you want Drs to go. #nhdd | |
| NHDD | We're about to move to T3, please share some closing thoughts on tips for successful family conversations about advance directives #NHDD | |
| NHDD | RT @deathwdignity Our ideas will likely change the more we talk RT @jorawstron #NHDD It doesnt have to be just one conversation #nhdd | |
| LovelyMariaG | ppl are too afraid of "the end" & think if they speak it, it will come.Not true! Just best to be prepared for the sake of your family! #NHDD | |
| NHDD | @NHDD @Deathwithdignity @Jorwastron ... that sums this up so perfectly #NHDD | |
| NHDD | Pre-T3 "Unmentionables" @adrane has spoken about this year http://t.co/z3NalL2L Big impact on health, little discussion around it #NHDD | |
| AfternoonNapper | @LovelyMariaG Great point about the fear of manifesting death. If I could manifest things, I'd manifest a reeeaaaaallly long vacation! #NHDD | |
| renee_berry | RT @AfternoonNapper: I would recommend that if one can have a more intimate relationship with their legal witnesses, to do so. #NHDD | |
| renee_berry | RT @AfternoonNapper: I was 25 when I first created an AD and HCPOA. A specific hospital staff member was assigned to discuss the topic with patients. #NHDD | |
| NHDD | T3 How do we give individuals the tools & confidence to walk others & family members through advance directives via @EngageWithGrace #NHDD | |
| jessicajohanna | RT @NHDD: T3 How do we give individuals the tools & confidence to walk others & family members through advance directives via @EngageWithGrace #NHDD | |
| DeathwDignity | RT @NHDD: T3 How do we give individuals the tools & confidence to walk others & family members through advance directives? #nhdd | |
| AfternoonNapper | @NHDD It's important to realize that what works for one person in terms of having the talk, may not work for another. #NHDD | |
| NHDD | RT @AfternoonNapper @NHDD Its important to realize what works for one person in terms of having the talk, may not work for another #NHDD | |
| AfternoonNapper | RT @aliciabloom: advance directives: abt maintaining control of treatment & being empowered. gifts to families & guides to clinicians #NHDD | |
| renee_berry | RT @NHDD: T3 How do we give individuals the tools & confidence to walk others & family members through advance directives via @EngageWithGrace #NHDD | |
| SanDiegoHospice | T3: Helping families understand AD items, such as what it means to want "life-sustaining" measures or not. Again, "shift" in thought. #nhdd | |
| renee_berry | T3 I think this is important because sometimes there is only so much that can be discussed in a 15 minute doctor's appointment #NHDD | |
| KathyKastner | RT @SanDiegoHospice: T3: Helping families understand AD items, such as what it means to want "life-sustaining" measures or not. Again, "shift" in thought. #nhdd | |
| jakekraft | @LovelyMariaG some cultures, like the Navajo culture, believe that talking abt death brings it on: http://t.co/DxtbuskM #NHDD | |
| renee_berry | T3 Important to remember much of the depth around these conversations happens outside the hospital, empowering caregivers is crucial #NHDD | |
| aliciabloom | RT @NHDD: T3 How do we give individuals the tools & confidence to walk others & family members through advance directives via @EngageWithGrace #NHDD | |
| jakekraft | @LovelyMariaG we should be sensitive to this #NHDD | |
| SanDiegoHospice | RT @NHDD: Topic 2: What are some pointers/tips for a successful advance directive conversation with family? via @EngageWithGrace #NHDD | |
| NHDD | RT @SanDiegoHospice: T3: Helping families understand AD items, such as what it means to want "life-sustaining" measures or not. Again, "shift" in thought. #nhdd | |
| jessicajohanna | T3 Presenting advance directive plans thru examples & storytelling could be a way to get loved ones more comfortable thinking about it #nhdd | |
| SanDiegoHospice | RT @renee_berry: T3 Important to remember much of the depth around these conversations happens outside the hospital, empowering caregivers is crucial #NHDD | |
| NHDD | @jakekraft so important to remember to ask about cultural influences that may shape the way people feel about discussing AD's #NHDD | |
| renee_berry | RT @jessicajohanna: T3 Presenting advance directive plans thru examples & storytelling could be a way to get loved ones more comfortable thinking about it #nhdd | |
| NHDD | RT @jakekraft: @LovelyMariaG some cultures, like the Navajo culture, believe that talking abt death brings it on: http://t.co/DxtbuskM #NHDD | |
| DeathwDignity | T3: Starting off a #eolc discussion w/some of the more fun aspects (like @kathykastner's tequila and chocolate) can break the ice #nhdd | |
| renee_berry | T3 Anyone know of #healthcare orgs that have specific programs dedicated to empowering caregivers to discuss advance directives? #NHDD | |
| AfternoonNapper | @jakekraft That's fascinating about the Navajo. #NHDD | |
| CasaHospice | @jessicajohanna That's a terrific idea. Makes it less abstract for people. #NHDD | |
| NHDD | RT @renee_berry: T3 Anyone know of #healthcare orgs that have specific programs dedicated to empowering caregivers to discuss advance directives? #NHDD | |
| KathyKastner | RT @jessicajohanna: T3 Presenting advance directive plans thru examples & storytelling could be a way to get loved ones more comfortable thinking about it #nhdd | |
| NHDD | We're coming to the last few minutes of the chat, please share any thoughts & ideas you have about today, advance directives & #NHDD | |
| KathyKastner | T3 #NHDD I'm developing mobile app for #eol decisions: collecting stories = key component | |
| aliciabloom | earlier discussion re: health care wishes before crisis allows it to focus more on values & preferences as opposed to urgent decisions #NHDD | |
| KathyKastner | @DeathwDignity thank for shout out :) #eolc #nhdd | |
| DeathwDignity | @NHDD TY for having these monthly chats! Hope you all will continue the #eolc discussion brainstorming w/#DWDchat tomorrow at 6p ET. #nhdd | |
| Qualtonomy | @NHDD: Qualtonomy is working to create free and convenient tools to help everyone engage in advance care planning #NHDD | |
| aliciabloom | advance directives are not about death, they're about living-- how people want to live, what quality means to them #NHDD | |
| NHDD | @KathyKastner sounds interesting Kathy, looking forward to hearing more about it! #NHDD | |
| DeathwDignity | @KathyKastner you bet! it really is one of my favorite documented #eolc wishes. #nhdd | |
| jessicajohanna | RT @aliciabloom: earlier discussion re: health care wishes before crisis allows it to focus more on values & preferences as opposed to urgent decisions #NHDD | |
| NHDD | @Qualtonomy sounds exciting too! There's such a need for more improvement & innovation! #NHDD | |
| Qualtonomy | RT @aliciabloom: advance directives are not about death, theyre about living-- how people want to live, what quality means to them #NHDD | |
| CasaHospice | @NHDD @EngageWithGrace Thanks for hosting this #NHDD tweet chat! The more awareness, education, discussion, the better! | |
| renee_berry | @jessicajohanna just said "I want to put her in my brain" about @aliciabloom being so Consistently articulate :) #NHDD | |
| NHDD | RT @aliciabloom: earlier discussion re: health care wishes before crisis allows it to focus more on values & preferences as opposed to urgent decisions #NHDD | |
| DeathwDignity | RT @aliciabloom: advance directives are not about death, they're about living-- how people want to live, what quality means to them #nhdd | |
| DrBeckerSchutte | So sorry to have missed #NHDD chat. If anyone wants to pick up the convo about how to improve the system for EOLC, come by #EOLchat 9pm CST! | |
| DeathwDignity | RT @DrBeckerSchutte: So sorry missed #NHDD chat. If anyone wants to pick up the convo about improving #EOLC, come by #EOLchat 9p CST! #nhdd | |
| NHDD | Thank you everyone for joining the conversation everyone! Hope to see you next month NHDD Founder @NathanKottcamp will be hosting! #NHDD | |
| SanDiegoHospice | T3: @renee_berry: we offer a Speakers Bureau for the community (free of charge) and can provide presentations re: completing an AD. #nhdd | |
| Qualtonomy | Thank so much @NHDD! Looking forward to next chat! #NHDD | |
| NHDD | Huge thank you to @EngageWithGrace for submitting family focused topics today about advance care planning today #NHDD | |
| DeathwDignity | RT @NHDD: Thank you everyone for joining the conversation everyone! Hope to see you next month NHDD Founder @NathanKottcamp will host! #nhdd | |
| jessicajohanna | Thanks @NHDD! Will be back next month. #nhdd | |
| NHDD | Remember @EngageWithGrace @ Thanksgiving next week is an opportunity for honest thoughtful advance directive conversations with family #NHDD | |
| SanDiegoHospice | Yes - thank you! -->@CasaHospice @NHDD @EngageWithGrace Thanks for hosting this #NHDD tweet chat! #nhdd | |
| renee_berry | What a great group today! So fun to see this chat grow to advocate for better advance directive awareness!!! Thanks for participating! #NHDD | |
| Qualtonomy | RT @NHDD: Remember @Thanksgiving next week is an opportunity for honest thoughtful advance directive conversations with family #NHDD | |
| DeathwDignity | RT @NHDD: Remember @EngageWithGrace @ Thanksgiving: an opportunity for honest thoughtful advance directive conversations with family #nhdd | |
| MDelaCalzada | RT @NHDD: Remember @EngageWithGrace @ Thanksgiving next week is an opportunity for honest thoughtful advance directive conversations with family #NHDD | |
| DefiningChoices | RT @NHDD: Remember @Thanksgiving next week is an opportunity for honest thoughtful advance directive conversations with family #nhdd | |
| NHDD | Next #NHDD TweetChat will be Friday December 16th 1p EST http://t.co/0ME4FoHe Hope you can mark your calendar & join the conversation! | |
| DrBeckerSchutte | MT @NHDD: Next #NHDD TweetChat will be Friday December 16th 1p EST http://t.co/kv4oCjHx Hope you can join the conversation! | |
| Qualtonomy | RT @NHDD: Next #NHDD TweetChat will be Friday December 16th 1p EST http://t.co/k1xfe8Md Hope you can join the conversation! #NHDD | |
| NHDD | RT @AfternoonNapper: @NHDD It's important to realize that what works for one person in terms of having the talk, may not work for another. #NHDD | |
| aliciabloom | RT @NHDD: Remember @EngageWithGrace @ Thanksgiving next week is an opportunity for honest thoughtful advance directive conversations with family #NHDD | |
| NHDD | Gundersen Lutheran Hospital in La Crosse #Wisconsin promote advance directives http://t.co/yMkN90Hw via @aymanfadel #NHDD | |
| NHDD | Closing The Gaps http://t.co/GcOULSgg by @NathanKottkamp #NHDD #hpm #s4pm #advancedirectives #healthlit | |
| DeathwDignity | Great #NHDD chat. TY for RTs @renee_berry @AfternoonNapper @Allergic2Snow @Obfusticate @TinaC519 @teaminspire @NHDD @KathyKastner | |
| Qualtonomy | RT @NHDD: Gundersen Lutheran Hospital in La Crosse #Wisconsin promote advance directives http://t.co/ltKpfmYK via @aymanfadel #NHDD |
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